Comments on: Lupus

By: amelia

amelia — Mon, 16 Aug 2010 07:23:46 +0000

i was diagnosed with DLE two years ago…. recently i have been washing my hair with apple cider vinegar and i have noticed that less hair falls out, its shiner than it has ever been and actually feels nice to touch for once! hope that helps…

By: Kathryn Tucker

Kathryn Tucker — Thu, 29 Jul 2010 17:12:27 +0000

I have used Moducare for years. I have even been in remission before. I am currently experiencing pain but I am still on the Moducare. When I was told that I did not have lupus, I got off of the Moducare and it came back with a vengence. But I got back on it and it has really helped. I am going to try Colloidial Silver.

By: jacqueline james

jacqueline james — Sun, 11 Jul 2010 22:43:00 +0000

Hi I have been sick for as long as I can remember, since my teen years in high school now I am an adult with 3 kids and my condition has gotten worst I had blood clot in my legs and then my lungs then was tested for lupus the test came back negative but now I am having more sines skin rash allagy to sun hair lost and joint pain the doc said that its not always easy to decet as some person condition takes years to diagnose I don’t think I have that long I got a lupus diet sheet but my doc said I can’t follow as some of the herbs are life treating to my blood cloting problem I really need your healp can any one help as I am verry stressed and its not good for me as I could get a strokes or have ceasures

By: gricel

gricel — Mon, 21 Jun 2010 18:29:27 +0000

I have lupus for more than 2 years, I was taking prednisone,immuran,and plaquanyl in my researches I have found many things that can help, but I know that everyone is different, now am only tacking supplements, such as B’s,C’s,and omegas as well as colloidal silver,nony,and enzymes but also adrenal cortex extract, my natural doc recommended due to damage in my kidneys, even though am taking all this stuff my hair keeps falling, does anyone knows what to do to keep hair strong and healthy.

By: yolande

yolande — Tue, 15 Jun 2010 19:06:15 +0000

I have been researching lupus because I have had symptoms show up, especially the butterfly rash on my face and neck, and fatigue. I have not been diagnosed with lupus. I thought my butterfly rash and neck rash were allergic reactions to a tree scratch, and, or that the sunscreen I was using was too strong; being SPF 100. Symptoms started showing after a tree branch swung at me and scratched/burned my neck. My neck had scratces/burns that have gone unhealed. Now my face has the butterfly rash. I have read that in some cases, alfalfa sprouts can cause lupus. Now I am wondering if the tree branch may have contained the L-Canavanin amino acid that is found in alfalfa sprouts, and can be negative for B-cell function and trigger lupus in some. If you have had such an experience, please share. Maybe this will help those who are doing research. Over the counter hydrocortisone creams, tea tree oil mixed with bee balm have helped some, but the rash comes back after a day or two.

By: marilou mandario

marilou mandario — Mon, 14 Jun 2010 05:34:00 +0000

hi,i`ve sick for more than a year.it starts with back pain and my mucles are stiff.i pass a scan and i git herniated n slip disk.i`ve got three infiltration and nothing is working.
last month i do a blood test and it is POSITVE ANA,i lost a lot of my hair,dry mouth,nausea, headaches and feel tired and i`m losing a bit of my vision.

i would appreciate a lot if somebody can reply,ty

marilou

By: jeanne tanner

jeanne tanner — Wed, 17 Feb 2010 01:10:30 +0000

for migraines. I have suffered for 12 years. I am 44 years old and finally found an antiaging doctor who would listen and prescribe vitamins and minerals for relief. it was trial and error for about 5 months but finally after this doctor consulting with other doctors regarding migraines we have finally found the solution that works for me. I started on bioidenticals: estrogen and progesterone, and testosterone. I take 400 mg of b-2(this is the secret!) my seratonin levels never balanced out during my luteal phase of the month.the B-2 levels out this phase. I also take 5000 iu’s of D3 daily, and omega 3 and 6 daily.I was getting mini migraines every morning when i woke up, and one major 3 day migraine (pain was behind my right ear,in my neck)I can truthfully say that my energy is great! thanks to the b-2 and I feel normal again.

By: Cynthia with Lupus

Cynthia with Lupus — Sat, 30 Jan 2010 16:25:29 +0000

I have had Lupus for years and had cancer 5 years ago. I also caught EVERY infection going around and I kept it longer and had worse symptoms. I have tried EVERY possible natural cure or diet. These are my top natural treatments that really work for me. First I keep a really good diet. I follow mostly a Mediterranean style diet with Asian influences. My diet is heavy on the olive oil, light on meat and fake foods are not on the menu (sodas, processed foods, High Fructose corn syrup or anything else that has to be made in a lab). I eat more veggies than anyone I know.

I do have three food remedies that work as well as drugs.
1. Curry powders (Turmeric based) I season with curry powders like an East Indian!
2. Fresh pineapple-this has to really be fresh. I noticed that the pasteurized “fresh” doesn’t work. (Bromelain, the chemical in pineapple that is thought to be the active constituent that makes pineapple work can be found in pill form. I have no idea if it works as well.)
3. Ginger. OK I sometimes “cheat” with ginger and take the supplement forms of ginger. It is hard to eat lots of ginger. Ginger is a great anti-inflammatory and works wonders on nausea.
When I have joint pain or weakness, the above food remedies work fast and well.
When I have a flair, I eat lots of the foods above and begin to get relief the next day!
I also take the following supplements to make my immunity work better.
1. Vitamin C has anti-inflammatory aspects and helps built collagen too.
2. Vitamin D3 has worked better than anything I have ever taken to avoid infections. Last year I started taking D3 and instead of being the person who is always ill, I have watched friends get sick and have stayed well! D3 is amazing.
When I have muscle pain, I take black cohosh which really helps myalgia. (If it is bad, I will admit that I might add a liquid Motrin to the herb!)
I also take milk thistle for about one week a month to help support my liver.
I also started going to the gym to build core strength. I was told that weight training was bad for Lupus, but if you use a machine instead of free weights and really listen to your body, it is a great thing. I have only been going for 5 months and I am so much stronger and steadier.
Following this regimen, I have managed to not have to take steroids or even much in the way of pain killers. My pain and disability is greatly improved and I have hope that I will one day actually feel good.

By: Bailey

Bailey — Thu, 20 Aug 2009 05:00:46 +0000

I take colloidal silver every night. This helps with my fatigue greatly. I also try to do a detox every 3 months or more to help rid my body of toxin and take detoxing herbs from dherbs.com. I will continue to search for a cure as I know in my heart that nothing is incurable. When I read that lupus is “incurable” to me that just means they haven’t found a cure yet. Remember all diseases at some point have been deemed incurable from tuberculosis to pneumonia. I pray for each of us who are affected by the symptoms of this disease and others and know that someday really soon we will find a cure–If I have to spend the rest of my life searching and trying different herbs it will be done in God’s speed!

By: Peggy Rhodes

Peggy Rhodes — Sun, 20 Apr 2008 04:44:12 +0000

From my early twenties (I’m now 58), I suffered with sinus/migraine type headaches. I never really knew which they were since the symptoms cross over. It got to the point where I was sick to my stomach every day (sometimes all day, throwing up) and so woozy with a headache that I could barely function.

My cure search involved a parasite cleanse, a peptostrep vial regimen, Yamamo powder in honey, probiotics and finally diluted tea tree oil nose drops. The tea tree oil nose drops do burn and they are not pleasant, but they definitely work. I can knock out a cold in three days if I feel one coming on by starting the drops hourly or more if possible (I’ve use them every 15 minutes). The drops also keep my headaches away.

If I feel that “certain” feeling in my head, like I’m going to get a headache, I start the drops and take a BC powder. That does it for me, and I had been so sick with these headaches, I truly thought that I might be dying. I think that maybe it is the antifungal property of the tea tree oil. I occasionally irrigate my sinus’ with a water pik using 1 teaspoon sea salt and 1 teaspoon baking soda. The dilution for the tea tree oil nose drops is 5-7 drops per one ounce of filtered or distilled water (in a pinch, boil tap water). Warning: it does burn, but after repeated use, a person gets used to it and is able to tolerate it because it works when all else fails.